Well, I may have Hemochromatosis and Diabetes

Wayne said:
One. You are not alone. Two. We're here for ya.

That's appreciated Wayne. I just got my appointment reminder and one of the specialist I see on the 18th is for "Hematology/Oncology". Gee, Oncology?

Hematology/Oncology - the diagnosis and treatment of blood disorders and/or cancer

How fun.
 
Type II Diabetes?

Check...

Find out more on the 18th.

-edit-
Oh yeah, high blood pressure too. That one was a surprise.
 
Hemochromatosis - check

The amount of tests I will be going through now will be staggering. The initial fear is pretty much gone, it is what it is. Now the tests turn to see what damage is done. That is not to say I am happy about the idea of things like the liver biopsy, but I can only control what I can control. Everything else I'll just have to take it like a man

To the guys (and possibly even cecila) here of European descent, you might want to consider getting screened. This is supposedly the #1 genetic disorder among men in the USA, affecting mainly men of European (heavily Irish) decent, but also African. It generally goes undiagnosed until serious damage is done. Often the complications such as Diabetes get diagnosed, but not the root cause until it is too late. Fluffy, I am looking at you.
 
redrumloa said:
Fluffy, I am looking at you.

I'm currently all out of blood. I have to wait to regenerate. I have precious little urine left either. These guys just take your bodily fluids in bulk.

(Personally I think they take them back to the mother ship and feed their larvae with them)
 
Well Jim,

I can't really speak for the hemochromatosis, but I've been dealing with the whole Diabetes type II thing since June.

Yes. Losing weight will help.
Yes. Giving up the carbs, while not easy, has helped a LOT
Yes. Keep testing your blood sugar.
Yes. Keep on your meds (my doc has me on glucophage)

You'll pretty much discover that you get "in tune" with your blood sugar and can guess what your levels will be when you're testing. For me at least, it's as simple as "eat like crap feel like crap".

I've pretty much given up on strict carb elimination, but every single meal, I sit and ask myself whether the tradeoff of something like a Whopper is really worth feeling like crap for two days.

That alone has made me a strong fan of high-protein, low-fat, low-carb meals like Chicken Wings and salads. I can however get away with a "low carb" (no bun) double occasionally. Wendy's even has a no-bun version and I can go in there and go ape with a burger, bowl of chili, and a side salad as long as I'm getting a little exercise (the hard part)

Could I do better? Sure. I need to get back to LOSING weight rather than just maintaining, but until this job thing, along with living in a hotel stabilizes, I'm doing the best I can.

Again, I can't speak for the long-assed weird hemowhatsits thing, but Diabetes type II is maintainable. You just have to learn to deal with it.

I may even "pay it forward" and grab you a couple of diabetic (cook)books for your birthday like Chris (Argo) did for me..

Wayne
 
Yep, being physically active is key. Don't you have an iPod? Just put that on and walk around for an hour. Get new music every day and go exploring parks and stuff while listening to music. Just don't walk into a McDonalds!!! :mrgreen:

And since we all got medical issues to post, I keep getting migraines. Had 2 this week. I always get an aura before the pain hits, which gives me time to take a double shot of advil and tylenol fast acting liquid caps. I've started keeping a diary of the migraines including possible triggers (using google docs, which turns out to be quite handy for this sort of thing as I can access it from anywhere). So far it seems that caffeine is the main culprit but too early to tell for sure. although 99% of all migraines occur at work. Hmmm... Maybe that's the trigger!
 
@Wayne

Thanks for the insights. I have a 2 day class early next month, after which I will probably have to start monitoring my blood. I too am on Glucophage along with Lisinopril-hctz (blood pressure med). I've gone back on an Atkins style low carb lifestyle, but have to modify it due to now having to avoid foods high in iron. No red meat, no pork, no spinach etc. Come to think of it, I think Dr. Atkins book has a chapter specifically for Diabetics, I need to dig that book out... Too bad he didn't have a chapter on iron overload :wink: On the plus size, on the 11th I was diagnosed and weighed ~266 at the doctor's office. That day I started meds and low carb. On the 18th (7 days later) I weighed ~253 at the doctor visit. Looks like the Glocophage is helping the diet significantly. On a related note, on the 11th doctor visit my blood pressure was 195/97. Last night testing myself I got 128/89. Looks like the Lisinopril is certainly helping here too.

I am trying to be more active, which I am already feeling a little better so it is getting easier. I hope too I can manage the Diabetes with diet, as long as my liver isn't too damaged (or cancerous). Hemochromatosis is progressive, but manageable if caught early. Right now the docs are getting mixed signals. The blood work suggests early stage, but symptoms suggest advanced. Fingers crossed...


@Mike
No iPod yet, but I may get one. I am definitely trying to be more active. I haven't been terribly active until I saw the doc, part of it is I have dealt with fatigue for years no, at times pretty severe. In just the last ~9 days I have been on medication and specific strict diet, I feel a difference. With the renewed energy I am walking the dog more often and forcing myself to take the stairs at work. The biggest so far is the crap load of time I am out in the yard now trying to rehab it. My yard has gotten waaay out of with overgrowth, so the last 2 weekends have seen a ton of work outside. I need to force myself to join a gym. I really should have no excuse as there is a 24hour gym literally adjacent to the property I manage. Walk out the front door of my building, through our parking lot and into the gym parking lot. Sorry to hear about the migraines, really don't have anything to suggest there. My wife gets them occasionally and the doctor really hasn't been too much help. If they are getting frequent, hound your doctor.
 
Glaucus said:
Yep, being physically active is key. Don't you have an iPod? Just put that on and walk around for an hour. Get new music every day and go exploring parks and stuff while listening to music. Just don't walk into a McDonalds!!! :mrgreen:

And since we all got medical issues to post, I keep getting migraines. Had 2 this week. I always get an aura before the pain hits, which gives me time to take a double shot of advil and tylenol fast acting liquid caps. I've started keeping a diary of the migraines including possible triggers (using google docs, which turns out to be quite handy for this sort of thing as I can access it from anywhere). So far it seems that caffeine is the main culprit but too early to tell for sure. although 99% of all migraines occur at work. Hmmm... Maybe that's the trigger!
one of my colleagues had very severe migraines. I pointed out to him that after my mother went through menopause her migraines were not as severe or happened as often.

unfortunately that won't help you :mrgreen:

I've heard these things are made worse by stress so maybe some stress management could help

maybe even green tea instead of coffee
 
Two days of diabetes classes attended, yesterday and today. Among things I have been informed (paraphrasing).

- Diabetes is bad, mmmmkay?
- You're a fat bastard and you brought this all on yourself (despite the fact mine is a complication of HH).
- Carbohydrates are sugar and sugar is bad, so stop doing Atkins and eat 8x as much carbs as you are now.
- Atkins is bad, you will lose weight fast and that is bad.
- You need to lose weight but our diet plan is loaded with carbs so you will never loose weight.
- Don't snack between meals! Doctors like to see your blood sugar levels be a roller coaster, it entertains them.
- You have a chronic disease, you will die
- You are so F***ed up, you are entitled to and should get a service animal
- You better get a shrink because you are a nutcase
- Your feet are going to get all f***ed up and the bones are going to pop out the sides
- Your limbs are going to rot and need to be amputated
- Drug companies are great! Try all these drugs, most of them cause weight gain and complications up to and including death.
- Remember our diet plan! Must have those carbs to keep needing meds!
- You need group counciling and maybe a hug
- All your organs are going to fail
- Don't ever forget you are a fat bastard


Ever get the feeling you'd rather go out like old yeller than getting pumped full of this nonsense? Wayne, I'm sure you can relate.
 
how about doing something intelligent and only eat FRESH vegetables and fruits.

and only a little bit of meat if you really must (like how they have it in the 'Mediterranean diet')
never drink soda or any sort of fake 'food'. If it didn't grow out of the ground of off a tree/bush it's probably not real and should be avoid like the plague.

and pay no attention to negative thinking. that's a {bleep} waste of time.
 
@ Red..
" Carbohydrates are sugar and sugar is bad, so stop doing Atkins and eat 8x as much carbs as you are now"

There was probably more depth to this. Whole grains are complex carbohydrates and are beneficial as they provide vitamins, nutrients, and fiber. Fiber helps to slow the absorbtion of sugar. Sugars are simple carbohydrates and don't have any significant nutrional value.

Atkins and other high protein diets do cause one to lose weight in the short term. As a long term eating style studies show the body eats itself for other nutrients - muscle and brain shrinkage along with kidney failure can occur.
 
redrumloa said:
Wayne, I'm sure you can relate.

I can, though it didn't take me 2 days of classes to do so. The initial discovery conversation with my doctor was;

Doc: You're a type 2 diabetic, and because of your weight, you have a crashed testosterone level. Your body isn't handling sugar, and it's not making testosterone any more. Here's a blood glucose meter and 5 new prescriptions most of which are $300/month if you don't have insurance. Check your blood 3 times a day until we get a handle on it, and I'll see you in two weeks to retest.

Most of what I learned was through the Internet, and from a "helpline" offered by my insurance. Once I hit the wall on low carbs, all I've been able to do is maintain at 50 pounds lighter than before, and even that's getting more difficult considering the stress of holding down a dual residency for a temp job.

Wayne
 
faethor said:
@ Red..
There was probably more depth to this. Whole grains are complex carbohydrates and are beneficial as they provide vitamins, nutrients, and fiber. Fiber helps to slow the absorbtion of sugar. Sugars are simple carbohydrates and don't have any significant nutrional value.

Of course there is more to it than what they said, but that is what they said paraphrased. Someone asked about how fiber impacts blood sugars and they answered "not enough to concern yourself with". Nonsense, I just listened quietly to be polite.

Atkins and other high protein diets do cause one to lose weight in the short term. As a long term eating style studies show the body eats itself for other nutrients - muscle and brain shrinkage along with kidney failure can occur.

(BTW, I am not to challenge you, just friendly conversation) Please link to studies if you can remember where you saw them. This is a common but old misconception about Atkins style low carb diets. People think it is nothing but eating red meat forever, but it is not. Induction is the only period you put yourself in a heavy state of ketosis, if you have a ton of fat to lose it goes after this first. The last stage of Atkins is maintenance, which has a fair amount of carbs and *NO* ketosis. Anyone who really understands Atkins (read the book) would not stay red meat only at any time(as I have seen some claim), especially not after the bulk of weight is lost. Nor would they try to stay in ketosis.

FWIW I have given up red meats entirely, due to the HH. Red meat hugely affects the absorption of iron, which for me is bad. I've also cut back on my pork and anything else high in heme iron(shellfish). What I am following now is a self modified Atkins style plan, which isn't as high in fats and protein as the standard Atkins. While I still eat meat, the balance is now pushed to salads and vegetables. I am also loosely watching my calories, keeping between 1,500-2,000 a day based on activity. I don't trust my crappy home scale, so I am curious what I weigh in at during Monday's doctor appointment. I am hopeful in the last 2 months that I am down close to 30lbs. The first appointment I weight in at 267, which was close to my all time high :? I am hopeful to see ~237. On a side note, at my height I should probably be 180-205. I am now targeting the lower end of the range. From what I have read, once I get through the weekly therapeutic phlebotomies (pint of blood drawn a week) and my iron levels get back to normal, I can expect much less bloating(weight loss). I can't wait to see the vampires!!!
 
cecilia said:
how about doing something intelligent and only eat FRESH vegetables and fruits.

and only a little bit of meat if you really must (like how they have it in the 'Mediterranean diet')
never drink soda or any sort of fake 'food'. If it didn't grow out of the ground of off a tree/bush it's probably not real and should be avoid like the plague.

and pay no attention to negative thinking. that's a {bleep} waste of time.

I mostly agree with your post Cecilia. I am surprised how negative most of the classes were and how counter intuitive their dietary recommendations were. Sadly, I am no longer eating red meat. I do still eat poultry and pork, but to a lesser extent. Vegetables are good and I eat a lot more salads. I am trying to mix some of the aspects of the Mediterranean diet into my own low carb plan. At this point I am avoiding most fruit, but eventually some will be added back in. I have to closely restrict vitamin C intake, due to the fact it increases iron absorption. For the most part I try to follow the rule of "shop only in the perimeter of the grocery store, avoid the center isles". Processed food is bad, agreed. Thank you for your thoughts.
 
Wayne said:
Most of what I learned was through the Internet, and from a "helpline" offered by my insurance. Once I hit the wall on low carbs, all I've been able to do is maintain at 50 pounds lighter than before, and even that's getting more difficult considering the stress of holding down a dual residency for a temp job.

Wayne

Wayne,
Do you have insurance through the temp job atm? I guess probably not :( I'm curious, do you have the print out of your blood test results? I wonder if they did an "iron panel". BTW, check your email, I am sending you something.
 
@faethor

I'm reading through Dr. Atkins book again and thought you may be interested in this part.

Food for Thought
If you've been saturated for years with old journalistic cliches about the terrors of fat and protein and the virtues of carbohydrate, try sinking your teeth into these crunchy little thought nuggets. Your physician might find them revealing as well.

• 1991: A Canadian team substituted meat and dairy protein for carbohydrate in the
diets of ten men and women with high cholesterol. The group lowered their total
cholesterol by an average of six and a half percent, lowered their average triglycerides
by twenty-three percent and raised their HDL cholesterol by an average of twelve
percent.

• 1996: The INTERSALT, an international blood pressure study comparing 10,020
men and women in thirty-two countries, found that people with a dietary protein
intake of thirty percent above the average had lower blood pressure than people with
a lower intake of protein.

• 1997: In a twenty-year follow-up of 832 men tracked in the world-famous
Framingham Heart Study, re searchers matched incidence of stroke (there were sixtyone
in all) with dietary intake. The men with the highest intake of dietary fat had the
fewest strokes; the men with the lowest had the most strokes.

1998: A Seattle team analyzed the data from seventeen different population-based
studies that reported the relationship between triglycerides and heart disease. Men
with higher triglycerides had a thirty-two percent increased risk of heart disease;
women with higher levels had a seventy-six percent increased risk.

• 1999: The Harvard Nurses Study did a fourteen year follow-up on 80,082 women,
comparing incidence of heart disease. Findings show that the higher the intake of
protein, the lower the risk of heart disease in this group of women who were 34 to 59
years old at the outset of the study.
 
redrumloa said:
(BTW, I am not to challenge you, just friendly conversation) Please link to studies if you can remember where you saw them.!
New England Journal of Medicine would be one of the better if not best sources to check for this sort of stuff.

Here's one on Mediterranean diet being better on diabetes then low fat or low carbs.

Here's a 2003 study on Atkins directly At 1 year there was no difference.

Another thing to check would be the Annals of Internal Medicine.
 
redrumloa said:
Processed food is bad, agreed.

Especially since everything processed has added sugar - and the worst of the added sugar products is high fructose corn syrup.

Fructose contributes to obesity, hypertension, kidney disease and fatty liver.

Interview with Dr. Richard Johnson.

Some very bad news around the 33 minute mark.
 
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